There are now many efforts around the world to address and improve this. Here in the UK, Cure Parkinson’s is funding the East London cohort study, led by Professor Alastair Noyce of Queen Mary University of London. The study follows a cohort of people with Parkinson’s from a variety of ethnic backgrounds (including 37% Asian and 11% Afro-Caribbean) with the goal of establishing clinical trial-ready cohorts.
Although these are good initiatives, there is still much work to be done. It is important for Parkinson’s research to make an active effort to include individuals from populations often forgotten and left behind to ensure everyone receives the proper attention and care. A good example is shown in David Plummer’s powerful short documentary, Shaking hands with the Devil, which shares the stories of people with Parkinson’s in Kenya.
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