Personal information is any information that can be used to identify you. For example, it can include information such as your name, date of birth, email address, postal address, telephone number and credit/debit card details, as well as information relating to your health or personal circumstances.
Data protection law recognises that certain categories of personal information are more sensitive. This is known as special categories and covers the processing of personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, or trade union membership, and the processing of genetic data, biometric data for the purpose of uniquely identifying a natural person, data concerning health or data concerning a natural person’s sex life or sexual orientation shall be prohibited. We would only collect sensitive personal information where there is a clear need to do so such as participation in a challenge event, to ascertain what services are relevant to you or to cater other support to you. Before collecting any sensitive personal information from you we will always make it clear to you what sensitive personal data we are collecting and why. We will also ask for your consent to store and retain this data.
We may collect sensitive personal data if you make the information public or if you tell us about your experiences relating to Parkinson’s.
Where it is appropriate we may also ask why you have decided to donate to us. We will never make this question mandatory, and only want to know the answer if you are comfortable telling us.
We will mainly use your data to:
Provide you with the services, products or information you asked for
Administer your donation or support your fundraising, including processing gift aid
Keep a record of your relationship with us
Ensure we know how you prefer to be contacted
Understand how we can improve our services and information
If you enter your details onto one of our online forms, online shop, or donate online and you don’t ‘send’ or ‘submit’ the form, we may contact you to see if we can help with any problems you may be experiencing with the form or our websites.
Understanding supporters and targeting fundraising and communications
We use research and screening techniques to ensure communications are relevant and timely, and to provide an improved experience for our supporters. We conduct research as it enables us to understand more about the people who support us and help us to make appropriate requests to supporters who may be able and willing to give more than they already do. Importantly, it enables us to raise more funds, sooner, and more cost-effectively, than we otherwise would.
In conducting our research, we may analyse geographic, demographic and other information relating to you so we better understand your interests and preferences in order to contact you with the most relevant communications.
With your consent from time to time we will contact you to let you know about the progress we are making and to ask for donations or other support. Occasionally, we may include information from partner organisations or organisations that support us in these communications. We make it easy for you to tell us how you want us to communicate, in a way that suits you and we will only contact you by email, phone or SMS with your consent. Our forms have clear marketing preference questions and we include information on how to ‘opt out’ when we send you marketing. If you don’t want to hear from us, that’s fine. Just let us know when you provide your data or contact us on 0207 487 3892 or firstname.lastname@example.org.
We do not sell or share personal details to third parties for the purposes of marketing. If we run an event in partnership with another named organisation your contact details will not be shared but names may be provided for administrative purposes e.g. registration/security. We will be very clear what will happen to your data when you register.
Sharing your story
Some people choose to tell us about their experiences with Parkinson’s to help further our work. They may take on a role as an Ambassador or Volunteer, attend our patient focused events or sit on our committees. This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information.
We monitor the types of people who are involved to ensure that the views we hear are representative of all people affected by Parkinson’s. If we have the explicit involvement and informed consent of the individuals, this information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report.
If we have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, this information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our bi annual postal publications (annual review and newsletter) or our monthly e-news.
Information is usually collected when children attend our events or fundraise for us.
Our fundraising events request specific information about the age of participants. If you are under 18 and would like to get involved, please ensure that you have consent from a parent or guardian before giving us your personal information. When we collect information about a child or young person aged under 18 we will make it very clear as to the reasons for collecting this information and how it will be used.
Where possible and appropriate we will seek consent from a parent or guardian before collecting information about children.