Read stories and testimonials from some of our amazing volunteers.

At the heart of our mission to find a cure for Parkinson’s are the incredible people who bring their experiences, enthusiasm, and their voices to the forefront of our research. Through sharing their stories, participating in clinical trials and surveys, or helping to shape research priorities as part of Patient and Public Involvement and Engagement (PPIE) groups, our volunteers inspire important progress and change. 

Here, we celebrate our volunteer family. Each testimony highlights the vital role people with Parkinson’s play in accelerating our journey towards a cure. 

As you read their stories, we hope you’ll feel inspired to join our community. Together, we can ensure that the voices of those living with Parkinson’s continue to shape the future of research and bring us closer to a world without Parkinson’s. 

Katy’s story

When Katy was diagnosed in 2021 at age 42, she was determined to take positive steps towards becoming involved in the Parkinson’s community. Volunteering to be part of a clinical trial was a big decision, but one she’s glad to have made.

Read more
Kuhan’s story

Since Kuhan’s diagnosis with young-onset Parkinson’s, much has changed in his life. The former project manager from southwest London was 38 when diagnosed, and since then, he has left office life behind and found a renewed sense of purpose about his future.

Read more
Julie Evans
Julie’s story

Julie Evans, who lives with Parkinson’s, shares how she managed her diagnosis, the value she’s found in getting involved in research and helping fundraise for a cure, and why “everyone with Parkinson’s has a part to play” in helping raise awareness of the condition.

Read more

Feeling inspired? Sign up now to join our volunteer community.

Sign up