Rallying to the Challenge 2022

1 month ago

Rallying to the Challenge is a meeting designed for and by people with Parkinson’s, advocates and care partners to explore how the Parkinson’s community can impact and accelerate research.

Each year the meeting takes an aspect of Parkinson’s research and discusses how people living with the condition can support and influence work in this area.

This year’s theme is: ‘Modifying Progression — From Molecules to Trials’ which mirrors the science symposium Grand Challenges in Parkinson’s Disease at Van Andel Institute, U.S.

The meeting is a hybrid in-person/online meeting.

Rallying to the Challenge survey 2022

We would like to invite you to take part in this survey about participation in Parkinson’s clinical trials. We hope this will enable us to create resources that support participation in clinical trials for as many people as possible. Questions will ask about the key barriers, facilitators and motivators to participation in research.

Read more here

Draft Agenda

*Please note the times below are BST. The event is taking place in the U.S. Eastern time.

28th September	Speaker
08.00 BST/13.00ET	Grand Challenges main auditorium
	Jay Van Andel Award Lecture Dr Tony Lang, University of Toronto
09.00	Welcome and opening comments Shaun Hindley, Team Spark and Dr Soania Mathur PD Avengers, Jon Stamford
	Session 1: Biology and Pre-Clinical Overview
09.10	What to target in Parkinson’s? Dr Simon Stott
09.30	Challenges of translating pre-clinical research to the clinic Speaker (tbc)
10.00	Tea/Coffee – Stretch & Move Break
10.20	Panel discussion: How best to involve PwP in shaping Pre-clinical research? Dr Jon Stamford, Dr Tim Greenamyre
11.00	Session 2: Clinical Trials
11.00	The History of Clinical Trials: lessons Learned Dr Tony Lang, University of Toronto
12.00	Lunch – Stretch & Move Break
13.00	Session 3: Clinical Trials, Barriers, Motivators, Facilitators
13.00	Survey Findings: Dr Leah Mursaleen and Rosie Fuest and Dr Emma Lane
13.30	Break-out Groups
15.00	Tea/Coffee – Stretch & Move Break
15.30	LEARNING to Inform Trials of the Future Dr Emma Lane, University of Cardiff
16.15	How patient involvement in trial design is having an impact: Dr Camille Carroll
	Q & A

29th September	Speaker
09.00	Welcome and opening comments: Shaun Hindley, Team Spark and Dr Jon Stamford
	Session 4: Clinical Trials
09.10	MiND – Collaborating to find genetic and epigenetic changes in Parkinson’s Dr Darren Moore, VAI
09.30	The GLP-1 Trials – Dr Wassilios Meissner and Dr Tom Foltynie (tbc) Mitochondria Dr Oliver Bandmann, c-Abl and Dr Tanya Simuni (pre-record)
10.40	Tea / Coffee – Stretch & Move
	Session 6: Future of Clinical Trials
11.00	The Challenge of Proving Efficacy: regulatory position, measuring target engagement, measuring biochemical change, measuring clinical change, patient relevant outcomes Dr Katie Kopil with Gary Rafaloff, Diane Stephenson (pre-record)
11.50	Lunch – Stretch & Move Break
13.00	10 years of iLCT (Main Auditorium) chaired by Dr Darren Moore Drs Patrik Brundin, Richard Wyse and Simon Stott
13.30	Tom Isaacs Award
13.45	Findings from Rallying 2022
	Q & A

Rallying to the Challenge is a meeting designed for and by people with Parkinson’s, advocates and care partners to explore how the Parkinson’s community can impact and accelerate research.

Rallying to the Challenge survey 2022

Details