Were you or a loved one diagnosed with Parkinson’s disease five or more years ago? A new study wants to hear how you think about treatments.
A new research study aims to learn how people with Parkinson’s and their loved ones think about treatment options. This study is funded by The Michael J. Fox Foundation for Parkinson’s Research and supported by Cure Parkinson’s and conducted by RTI Health Solutions (RTI-HS), a nonprofit research organisation.
Volunteers will participate in a 60-minute web-based interview (audio only). The study team will ask about your experience with Parkinson’s, including medications. They will also ask your knowledge of, thoughts, and feelings around newer types of treatment options for Parkinson’s.
This information will be used to help develop a survey examining treatment preferences within the Parkinson’s community. The results of that survey will improve our understanding of how Parkinson’s therapies are perceived and evaluated. As the number of treatment options grows, this information can guide better shared decision-making between doctors and patients. Understanding what matters to patients can also help to ensure that new treatments being developed will meet patient needs.
The study is recruiting people with Parkinson’s aged 40 to 80 years. You must have been diagnosed five or more years ago. Care partners of a person diagnosed with Parkinson’s five or more years ago are also eligible.
This research study does not test any treatment. Volunteers will be compensated for their time with £100 via a payment method of their choosing.
If you are interested in participating or want to learn more, please contact Global Perspectives, the UK-based recruitment partner for this study, to see if you – or someone you care for – is eligible for an interview.