New treatments will only become available by testing them in people with Parkinson’s

Cure Parkinson’s funds and supports clinical trials which seek to slow, stop or reverse Parkinson’s. Find out about the trials which are recruiting now, as part of our International Linked Clinical Trials (iLCT) programme developed in partnership with Van Andel Institute (VAI).

iLCT trials recruiting now

Find trials recruiting now

Taking part in research is vital because it enables earlier, more accurate diagnoses, better predictions of future disease progression and more insight into the biology of the condition. Other studies, some of which are online, are recruiting participants now.

The Predict-PD Study – an online study

PREDICT-PD is a ground-breaking project using simple tests to identify people at high risk of Parkinson’s disease before the symptoms appear. If we can predict who is going to get Parkinson’s, we will soon have treatments for those in the early stages that could slow or prevent the condition progressing.

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PD Frontline – an online study

If you are a person with Parkinson’s and you would like to be genotyped to determine whether you are a carrier of a mutation in the genes associated with Parkinson’s, for example the GBA gene and the LRRK2 gene, you may be eligible to participate in certain research studies or clinical trials.

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PD Nexus – an online study

PD Nexus is supporting research efforts for Parkinson’s through remote participant screening, genetic testing and counselling, education in Parkinson’s disease genetics, travel coordination, digital applications, study adherence, tissue procurement and distribution, and more.

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QMAP-PD

QMAP-PD is an ongoing study using advanced brain imaging techniques based at the Wellcome Centre for Human Neuroimaging, UCL. The aim of this work is to better understand the causes of variability between individuals with a common disorder called Parkinson’s disease

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CHIEF-PD Trial

The Cholinesterase Inhibitors to Prevent Falls in Parkinson’s Trial (CHIEF-PD) is a medical research trial that is examining whether drugs normally used to treat people with memory problems can also be used to reduce the number of falls that people with Parkinson’s experience. If you have fallen in the past year because of your symptoms, you could be eligible to take part in this study.

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Online Survey: Therapies for later-stage Parkinson’s

How much do you know about the treatments available for people with later-stage Parkinson’s? A new survey from the EPDA and UK-based company Britannia Pharmaceuticals is investigating what information people with Parkinson’s receive about therapies for the later stages of the condition, and about non-oral therapies. People of all ages and at different Parkinson’s stages are invited to complete around 20 multiple-choice questions in an online questionnaire.

Later-stage Parkinson’s survey

Other research study websites which might be of interest:

Fox Trial Finder

Fox Trial Finder is a user-friendly online matching tool from the Michael J. Fox Foundation for Parkinson’s Research (MJFF) which helps you find observational studies and clinical trials in your area. Find out more.

Fox Insight

Fox Insight is an online clinical study building a large, diverse cohort of people with Parkinson’s and age-matched control volunteers to provide the research community with critical insight into the lived experience, genetics and variability of Parkinson’s. Find out more.

ClinicalTrials.gov

ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Find out more.

PDTrialTracker.Info

The goal of PDTrialTracker.info is to provide Parkinson’s patients, families, researchers, health care providers, and other interested members of the PD community with analysis of ongoing PD clinical trials and observational studies throughout the world in order to:

  • understand the types of trials underway and where they are in the pipeline,
  • highlight the most promising avenues of research (e.g., particular disease modifying therapies, symptomatic treatments)
  • uncover roadblocks in the trial process and ways to address them (e.g., improving recruitment methods, enhancing clinical trial best practices),
  • promote accurate and timely sharing of trial information for ongoing and completed trials (e.g., within ClinicalTrials.gov),
  • facilitate greater collaboration between Parkinson’s patients, families, researchers, and physicians to accelerate progress towards a cure.

Find out more.

Parkinson’s UK

If you are in the UK you can visit the Parkinson’s UK website for help with finding research studies recruiting. Find out more.

 

The NIHR – Be Part of Research Campaign

If you are in the UK, ‘Be Part of Research’ can help you find out about health and social care research that is taking place across the UK. Find out more.

Clinical Trials Charter

If you are thinking of volunteering for a clinical trial, the Clinical Trials Charter aims to set a standard of practice for those involved in clinical trials for Parkinson’s.

Find out more